First of all, let me tell you a little about me. I was diagnosed with cerebral palsy when I
was a year old. My mom told me that I
basically had gone through therapy since I was two years old. She had a normal pregnancy just like my
sisters and brothers, but she had to have an emergency c section and we almost
didn’t make it. I had to stay in the hospital for the first three months of my
life. My mom used to te1ll me that she
would come and feed me every day between going to work and going home to take
care of my great grandma and sisters. We
were lucky to live with my great grandma because she would watch us after
school and when we waited for our dad to get us on Friday. I’ll tell you about the bond I had with her a
little later. Since I can remember I went
to occupational and physical therapy once a week. I had to have help getting my mussels to get strung
enough to be able to learn how to craw. I didn’t craw until I was 3 years old. I
usually rolled around to get where I wanted to go. My arms didn’t let me control them enough to
push myself in a manual wheelchair, so I didn’t have that much independentence
when we went outside. It wasn’t until first grade that I got my first power
chair. Man, I was happy to run around with my sister.
School wasn’t hard for me. I was in regular classes doing
the same work as my classmates. I got teased a lot through elementary school
because kids thought my aid was doing all my work for me. They didn’t think I
could do it. That wasn’t the only thing I
got teased about. It wasn’t until 6th
grade when my friends started to not wanting me to play with them. Every day I would hide under the slide till
it was time to go inside. When it was time for me to go to middle school I got
scared. I wasn’t going to have the same kids that I grew up with at my middle
school. At the beginning of the year my reading teacher suggested I do a speech
about my disability. After that it wasn’t hard to make friends or talk to
people. I got involved in clubs, student council and even went to a couple of
dances. My first semester of high school was hard because I was shy and wasn’t comfortable
talking to people, even though I was with kids that I grew up with and knew for
years. I got over that slowly. My Jr. Year
was easier. I had friends that weren’t afraid of being seen with me, boys were
starting to notice me more, I met my wonderful boyfriend, and got closer to an old
friend from telemetry school. It was also the start of a difficult year for me and
my family.
About a month before I started my Jr. Year I lost my
grandfather to cancer. He fought for a year before he passed. It was hard for
us to see him deteariate the last couple of months of his life. He was a strong
man who loved being around his grandkids. He loved to hunt and fish whenever he
could. A few mounts later, it was the day of winter vacation. I was having a
great day my friends and I had fun. When I got home I wasn’t expecting my mom
to get me off the bus that day. She was waiting for me on the porch. When she
told me my great grandma was gone and didn’t want me to see the bed empty i broke down right away. That
was the second worst day of my life. I was really close to her. She was like my
second mom. She did stuff with us that
my mom couldn’t do. She always played with me. We were super close. Then, not
even a year later, my chair got stolen. Many of you know about that. I thank
you for all of the support I CAN’T THANK EVERYONE ENOGH… then two months later.
I got woken up to my mom’s boyfriend telling me that my mom was gone. That was
the worst day in my life.. I’m hanging in there because of my family and
support system. Not a day goes by that I
don’t miss my mommy or my grandma.
Currently I’m attending the Illinois center for rehabilitation
and education. It’s a place where teens
with physical disabilities go to learn
how to live in the community independtly. I’m hoping to get an apartment with my boyfriend and go
to uic and major in architecture.
I’m hoping that this blog will not only help me but inspire
people who are hard on their self’s
That’s it for now, love and god bless
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